At only 14 years of age, Macie Greening has been given an accolade that nobody in the world deserves. Peritoneal mesothelioma is one of the rarest forms of cancer, with less than 20 confirmed cases among children. In spite of this terrible diagnosis, there is some good news, as her condition is steadily improving now with the help of a new form of medication.
It was back in March when Macie started complaining about stomach issues. At first, everyone thought it might be some food intolerance, but her condition was getting worse. Eventually, she was hospitalized and countless scans and tests followed. A drain had to be put into her stomach and a Hickman line through her neck.
Mesothelioma is usually caused by exposure to asbestos, a group of minerals made of tiny fibers that used to be widely used in construction, but has been banned from use for several decades. The microscopic fibers can easily get in the lungs, where they get stuck, damaging them over time. As a result, mesothelioma often starts in the lungs. Physicians were unable to determine how the girl developed the disease.
Macie went through four rounds of chemotherapy, unfortunately, the treatment was not effective and had to be stopped as it was affecting her health. After a laparoscopy in August, they found out that surgery was not a viable solution and started looking for alternative options. This is when the chance to be part of a new clinical trial showed up.
The courses of Ceritinib managed to shrink her tumors and Macie has been getting better with each month that passes. Everyone is amazed by how well the therapy is going.
Thanks to a crowdfunding page set up by her family and loved ones, she will get to experience her greatest dream, that of visiting Disney World. The trip was already booked for next March, one year after the whole experience started.